So how was my meeting with the guy from Leeds CAMHS?
My home city of Leeds is one of the first areas in England which is pioneering FBT (Family Based Therapy) as the primary model for treating adolescents with eating disorders in the city. It all goes back to Chancellor Of The Exchequer George Osborne’s Autumn Statement in 2014 when he promised an extra £2 billion a year of additional funding for the NHS across various services including mental health. Leeds was one of the authorities that applied for funding and they were successful in their bid. So some of this funding is being used to roll out a new service for adolescents with eating disorders within the Leeds postcode area.Hopefully, the new service will “go live” at some point this year, but I’m not sure when. Meanwhile …
So much going on at the moment!
If you look back on my blog posts over the last couple of years, you’ll notice that they were a bit thin on the ground for a while. That was because of the Post-Traumatic Stress Disorder, etc which suddenly hit me about 27 months ago and which meant that I had to take a break from anything to do with eating disorders because I found it very triggering.Thanks to the fourth set of therapy sessions (care of the NHS!), I seem to have finally come out the other end. I still have issues with anxiety, but am pretty much able to manage this using all the various CBT/mindfulness tools that I’ve learned along the way. Unfortunately I haven’t been able to fix the nightmares …
It’s just life… going on as normal. Good normal. Just like anyone else.
Over this last week, my son and I have gone through a heck of a lot. Not to do with his (now thankfully gone) eating disorder, but to do with a GIRL. Let me explain…Recently he’s met this girl and he really likes her. A lot. But last weekend she was behaving a little off-hand and he was convinced that she was trying to dump him. So we went through all of that… all the usual heartbreak plus the added worry (in my mind) that something like this could ping him into relapse – or worse. And of course no one likes to see their child upset, eating disorder or no eating disorder.But the story so far is that she’s been poorly, which is …
SEDIG Conference in Edinburgh was really good
On Saturday afternoon I spoke at the SEDIG (Scottish Eating Disorders Interest Group) conference in Edinburgh about my family’s experience of getting my son through anorexia. It was great to see so many dedicated people together from across Scotland – mainly parents who are still struggling with an eating disorder in the family but also one or two clinicians, and the speakers, chaired by the amazing Dr Jane Morris, Consultant Psychiatrist, Eden Unit, Aberdeen.Everyone who spoke at the conference is doing an incredible job to raise awareness of the issue of eating disorders – and in the afternoon the focus was primarily on eating disorders in males, so it was great to see Sam Thomas from Men Get Eating Disorders Too and Paul Donald from Men …
Part #1 of my talk: "Eating disorders are not just a ‘girl thing’"
It all started in the spring of 2009 when our son Ben was 15. He’d been quite chubby at primary school and had been bullied as a result.But at secondary school he got into rugby and developed a new leaner, more muscly physique which he was very proud of.And because he was the “guy in the rugby team” he was very popular – he had a great group of friends. So during those first two years at secondary school things were going from strength to strength. Life was pretty normal.But by early 2009 Ben was getting fed up with rugby. However he was worried that if he stopped, he’d get fat again, lose his new physique and stop being popular. He was worried that he would be …
Part #2 of my talk: "Eating disorders are not just a ‘girl thing’"
Things began to get more obvious over the school summer holidays when Ben was at home and we were with him more.By this time he was exercising like crazy, every day. He joined our local gym and would run there and back as well as doing all the usual situps, etc.He developed a big interest in cooking and especially healthy cooking. He’d slim down recipes, cutting out all the fats and carbohydrates and make some quite weird concoctions that tasted pretty disgusting.He was also isolating himself. I don’t think he saw any of his friends throughout the entire summer holidays which was unusual for him.He was getting snappy and miserable, and not very nice to be around. And of course because he was …
Part #3 of my talk: "Eating disorders are not just a ‘girl thing’"
Throughout October we went to and fro to the GPs only to be told the same old thing: go home, eat more and come back in a couple of weeks.Meanwhile all the warning signs were getting stronger by the day. Mealtimes were becoming difficult; everything had to be perfect, weighed out to the nearest nanogram to make sure he wasn’t getting “too much”.Ben began to police my cooking in the kitchen and change recipes, striking through any “offending” recipes with a marker pen, and he would blow a fuse at the slightest thing.Meanwhile he was exercising like crazy – rugby, cross-country, yoga, situps, press ups and so on. He became obsessed with getting a six pack because he was convinced that his best …
A quick break from the talk transcripts…
After my SEDIG (Scottish Eating Disorders Interest Group) conference talk on Saturday about eating disorders in boys, one mum in the audience stood up. She said: “You’ve just told our story – it’s identical. Except for one thing. Unlike your son, ours didn’t make it; he passed away, aged 19.” My jaw dropped. And with it came a rush of emotion. Here was I, describing our recovery story. There she was, reinforcing the fact that eating disorders can kill. They are deadly diseases. And no matter how punishingly hard you work as a parent to get your child through it, the eating disorder can claim them in the end.I know some of us felt some guilt. Like survivors’ guilt, I guess. Our sons and daughters pulled through; …
Part #4 of my talk: "Eating disorders are not just a ‘girl thing’"
So… Just to summarise so far… My 15-year-old son Ben developed anorexia over the summer of 2009. In the September I took him to the GP but it was the end of October before a referral was sent off to CAMHS (the UK-based Child and Adolescent Mental Health Services). It took a further month before I heard back from CAMHS only to be told that it could be 18 to 22 weeks before he was seen, which would take it up to around Easter time. I was told there was nothing they could do to speed things up and we would just have to wait our turn…By this point, Ben was heading downhill at a rate of knots – like a nightmarish rollercoaster. We didn’t recognise our …
What do my elbow, back and my brain have in common?
Back in August I had a bike accident. I broke my elbow and herniated a disk in my lower spine. Meanwhile I was onto my fourth (or was it my fifth?) course of therapy for the PTSD, anxiety and depression I’d developed two-and-a-half years before – a delayed result of my brain attempting to cope with what it had been through during the years when I battled to get my teenage son through anorexia.It took around 12 weeks for my elbow fracture to heal. Eight months on I am still working on the tail-end of the disk herniation, very gradually easing myself back into normal tasks and even sport (I can’t wait to get back on my bike, for example, but will need …
Big flashbacks at teatime….
It’s curious how the brain gets ‘stuck’ in the ‘fight or flight’/Red Alert response, isn’t it? Take yesterday teatime for example (or evening meal, to non-Yorkshire people out there!) Paul and Ben were eating fish in breadcrumbs, chips and mushy peas. Ben commented on the fact that Sainsbury’s mushy peas weren’t a patch on Batchelor’s mushy peas. Then there was a silence. And the ‘stuck’ part of my brain suddenly went into FREEZE. I mean F.R.E.E.Z.E…Why? Because in the ‘bad old days’ when Ben’s anorexia was raging, he’d make a comment on something about the food not being right (too hot, too cold, too tasteless, too fatty, too little, too much, too dry, too salty, too… you name …
This’ll make you giggle
I just said to him: “I’m so proud of you, all these time-management skills and all that.” “What’s brought that on?” he said, suspiciously. So I told him I’d blogged about it and so on. “Aw, thank you!” he said. Then, giggling (in a little boy’s voice): “Okay, mummykins… I’ve been such a good little boy, can I have a million pounds, please? Like NOW! In CASH!!”That’s another bonus. He’s got his fabulous sense of humour back, too.