Meet Jordan Waters, a remarkable new member of the Obesity Action Coalition (OAC) who is stepping up and standing out as an advocate fighting for equal access to obesity care. Jordan’s story reveals her strength and the systemic issues many others face in their battle with obesity care.

Jordan’s journey with obesity began in her early teens. At just 13 years old, she began to notice that her body was larger than those of her friends. Adults around her labeled her as “heavy-set” or “big-boned,” making her feel like something was inherently wrong with her appearance. Despite eating the same amount as her peers, Jordan’s weight remained unchanged throughout her teenage years. She often felt isolated and self-conscious, unable to shake the feeling that she was different.

In her twenties, Jordan married her husband Joe, and her weight continued to increase. Then, after the birth of her son, a diagnosis of high blood pressure from her OBGYN served as a wake-up call, prompting her to seek further medical care. This period marked the beginning of Jordan’s quest for improved health.

It was only two years ago that Jordan finally found a dedicated primary care physician committed to helping her achieve improved health. Tests revealed she had osteoarthritis, a degenerative joint condition, and fibromyalgia, a condition that causes widespread pain. Jordan and her doctor discussed how weight loss could significantly improve her overall health and well-being. So, she adjusted her diet and incorporated exercise — but her weight remained unchanged.

Last November, a new medication offered Jordan a glimmer of hope. Her doctor believed it could be the breakthrough she needed. However, her insurance company denied coverage, citing a policy excluding treatments primarily used for weight loss. This denial was devastating, as Jordan couldn’t afford the medication out-of-pocket. The emotional and physical toll of this rejection left Jordan feeling hopeless and trapped in a system that seemed to disregard her needs.

Meanwhile, Jordan’s husband, Joe, faced his own health challenges when, three years ago, he was diagnosed with type 2 diabetes. His insurance covered multiple medications, helping him to effectively lose weight and manage his condition. Joe’s progress was further boosted by a physically demanding job and a new GLP-1 medication, also covered by his insurance. Joe eventually reached his goal, celebrating improved health.

Jordan is happy with her husband’s renewed health, but she is deeply frustrated that she cannot access the same care and improved health. The system worked for Joe but failed her, highlighting the obvious inequalities in healthcare coverage for obesity treatments. Jordan’s struggle continues, knowing that there is a treatment that could help her, but it remains out of reach due to unfair insurance policies.

Jordan’s determination to advocate for change was clear during her recent trip to Washington, D.C., for an OAC Hill Day, where advocates across the country came together to meet with key decision-makers to demand access to comprehensive obesity care. In her own words, “I should’ve been stoked to be on a plane for the first time in 10 years, but the seatbelt wouldn’t fit across my lap, the armrest was digging into my side. The thought of asking for help or saying something was mortifying.” This experience powerfully illustrates how everyday experiences can be much more difficult for people affected by the disease of obesity. “When you add that to the problem our society already has with weight stigma, issues like the one I had on the plane become much more embarrassing,” Jordan reflects. Her story emphasizes how deeply embedded and pervasive these challenges are, making it clear that the fight for equity in obesity care is far from over.

Jordan’s story is not just her own — it echoes the experiences of countless others in the United States. More than 130 million individuals in the U.S. live with the disease of obesity and face significant barriers to accessing essential medical treatments. Obesity is not just a matter of individual health; it’s a public health crisis with far-reaching impacts.

Those living with obesity face an increased risk of developing chronic conditions such as type 2 diabetes, heart disease, stroke and certain types of cancers. Additionally, the stigma and discrimination that often accompany obesity can lead to mental health issues such as depression and anxiety, further compounding the challenges faced by individuals like Jordan.

Jordan’s story is a powerful reminder of the urgent need for change. Despite her personal challenges, Jordan advocates for equitable healthcare coverage and support for all individuals living with obesity. She speaks out against the injustices in the healthcare system and fights for policies that provide comprehensive and accessible treatment options for everyone.

We must unite as a community to support one another and push for expanded access to comprehensive obesity care. Jordan’s story serves as a call to action for all of us to stand up, speak out and demand dignity and respect for those living with obesity. By sharing our stories and raising our voices, we can create a future where everyone can access the safe and effective care they need and deserve.

Join Jordan and the Obesity Action Coalition in this crucial fight. Together, we can make a difference and ensure no one is left behind in their journey to improved health.